The fight-to-die: older people and death activism

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Naomi Richards

Abstract

This article explores the activities and convictions of older right-to-die activists who belong to a small but very active interest group based in Scotland, UK, called Friends at the End (FATE). The analysis presented here is based on knowledge gained through seventeen months of ethnographic research with the organisation. While FATE activists currently campaign for a legal right to a medically assisted death, many are also open to taking matters into their own hands, either by travelling to the Swiss organisation Dignitas or by opting for what is known as ’’self-deliverance’’. FATE members’ openness to different means of securing a hastened death contrasts sharply with the more limited demands of the UK’s main right-to-die organisation, Dignity in Dying, and highlights their specific orientation to freedom, which, it is argued here, results from the organisation’s older demographic.

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References

Arber, S. & Ginn, J. (1991). Gender and Later Life: A Sociological Analysis of Resources and Constraints. London: Sage.

Aries, P. (1983). Hour of Our Death. Harmondsworth: Penguin. Barnes, M. (2005). The same old process? Older people, participation and deliberation. Ageing & Society 25: 245–259.

Berlin, I. (2006[1958]). Two concepts of liberty. In R. E. Goodin & P. Pettit (eds.), Contemporary Political Philosophy: An Anthology (2nd ed., pp. 369–387). Oxford: Blackwell Publishing.

Bloch, M. & Parry, J. (1982). Introduction. In M. Bloch & J. Parry (eds.), Death and the Regeneration of Life (pp. 1–44). Cambridge: Cambridge University Press. [Read this article]

Brewer, J. D. (2000). Ethnography. Buckingham: Open University Press.

Brogden, M. (2001). Geronticide: Killing the Elderly. London: Jessica Kingsley.

Bryman, A. (2001). Introduction: A review of ethnography. In A. Bryman (ed.), Ethnography: Volume I (pp. ix–xxxix). London: Sage.

Burr, J. A., Caro, F. G. & Moorhead, J. (2002). Productive aging and civic participation. Journal of Aging Studies 16(1): 87–105. [Read this article]

Choi, L. H. (2003). Factors affecting volunteerism among older adults. Journal of Applied Gerontology 22: 179–196. [Read this article]

Clark, D. & Seymour, J. (1999). Reflections on Palliative Care. Buckingham/ Philadelphia: Open University Press.

Cummings, E. & Henry, W. E. (1961). Growing Old: The Process of Disengagement. New York: Basic Books.

Davies, D. J. (2005). A Brief History of Death. Oxford: Blackwell. [Read this article]

Elias, N. (1985). The Loneliness of Dying. Oxford: Basil Blackwell.

Field, D. (2000). Older people’s attitudes towards death in England. Mortality 5(3): 277–297. [Read this article]

Foucault, M. (1984). Space, knowledge, and power. In P. Rabinow (ed.), The Foucault Reader (pp. 239–256). London: Penguin Books.

Frogatt, K. (2001). Life and death in English nursing homes: Sequestration or transition? Ageing and Society 21: 319–232. [Read this article]

Garner, A. (n.d). Ethical dilemmas in professional practice in anthropology. Case study 1:’’’’What you shouldn’t ask’: Environment, landscape and vested interests in England. Association of Social Anthropologists of the UK and Commonwealth. Available on http://www.theasa.org/networks/apply/ethics/case.shtml (Accessed: October 12, 2011).

Giddens, A. (1991). Modernity and Self-Identity: Self and Society in the Late Modern Age. Cambridge: Polity Press in association with Blackwell.

Gilleard, C. & Higgs, P. (2000). Cultures of Ageing: Self, Citizen and the Body. Harlow: Pearson Education Limited.

Gilleard, C. & Higgs, P. (2009). The power of silver: Age and identity politics in the 21st Century. Journal of Aging & Social Policy 21:277–295. [Read this article]

Gorer, G. (1965). Death, Grief, and Mourning in Contemporary Britain. London: Cresset Press.

Gott, M., Small, N., Barnes, S., Payne, S. & Seamark, D. (2008). Older people’s views of a good death in heart failure: Implications for palliative care provision. Social Science & Medicine 67: 1113–1121. [Read this article]

Gott, M. & Ingleton, C. (eds.) (2011). Living with Ageing and Dying: International Perspectives on End of Life Care for Older People. Oxford: Oxford University Press.

Green, J. (2008). Beyond the Good Death: the Anthropology of Modern Dying. Philadelphia: University of Pennsylvania Press.

Hertz, R. (1960[1907]). Death and the Right Hand. Aberdeen: Cohen & West.

Holloway, M. (2007). Negotiating Death in Contemporary Health and Social care. Bristol: The Policy Press.

Holtzman, A. (1963). The Townsend Movement: A Political Study. New York, NY: Basic Books.

Howarth, G. (1998). ’Just live for today’. Living, caring, ageing and dying. Ageing and Society 18: 673–689. [Read this article]

Howarth, G. (2007). Death & Dying: A Sociological Introduction. Cambridge: Polity Press.

Illich, I. (1976). Limits to Medicine: Medical Nemesis; the Expropriation of Health. Harmondsworth: Penguin.

Jean-Klein, I. & Riles, A. (2005). Introducing discipline: Anthropology and human rights administrations. Political and Legal Anthropology Review 28: 137–202.

Johnston, H., Larana, E. & Gusfield, J. (1994). Identities, grievances and new social movements. In E. Larana, H. Johnston & J. Gusfield (eds.), New Social Movements: From Ideology to Identity (pp. 3–35). Philadelphia, PA: Temple University Press.

Judd, M. & Seale, C. (2011). Joining a right-to-die society: Motivation, beliefs, and experiences’. Mortality 16(3): 223–241. [Read this article]

Kalish, R. A. (1968). Life and death – Dividing the invisible. Social Science and Medicine 2: 249–259. [Read this article]

Katz, J. (2001[1983]). A theory of qualitative methodology: The social system of analytic fieldwork. In A. Bryman (ed.), Ethnography: Volume IV (pp. 197–120). London: Sage.

Kellehear, A. (2007). A Social History of Dying. Cambridge: Cambridge University Press. [Read this article]

Kellehear, A. (2009). Dying old – and preferably alone? Agency, resistance and dissent at the end of life. International Journal of Ageing and Later Life 4(1): 5–21. [Read this article]

Kelner, M. (1995). Activists and delegators: Elderly patients’ preferences about control at the end of life. Social Science & Medicine 41: 537–545. [Read this article]

Kemp, N. (2002). Merciful Release: The History of the British Euthanasia Movement. Manchester: Manchester University Press.

Kübler-Ross, E. (1970). On Death and Dying. London: Tavistock Publications.

Kuhn, M. (1991). No Stone Unturned. New York, NY: Ballantine Books.

Lawton, J. (2000). The Dying Process: Patients’ Experiences of Palliative Care. London: Routledge.

Lloyd, L. (2004). Mortality and morality: Ageing and the ethics of care. Ageing & Society 24: 235–256. [Read this article]

Macdonald, B. with Rich, C. (1985). Look Me in the Eye: Old Women, Aging and Ageism. London: The Women’s Press.

Martinson, M. & Minkler, M. (2006). Civic engagement and older adults: A critical perspective. The Gerontologist 46(3): 318–324. [Read this article] PMid:16731870

McInerney, F. (2000). ’’Requested death’’: A new social movement. Social Science & Medicine 50:137–154. [Read this article]

Morrow-Howell, N. (2000). Productive Engagement of Older Adults: Effects on Well-being.Washington University, MO: Center for Social Development.

Mulkay, M. (1993). Social death in Britain. In D. Clark (ed.), The Sociology of Death: Theory, Culture, Practice (pp. 31–50). Oxford: Blackwell/The Sociological Review.

Patton, M. Q. (2001[1990]). Purposeful sampling. In A. Bryman (ed.), Ethnography: Volume II (pp. 106–122). London: Sage.

Rorty, R. (1998). Truth and Progress: Philosophical Papers. Cambridge: Cambridge University Press. [Read this article]

Scott-Jones, J. & Watt, S. (2010). Ethnography in Social Science Practice. London: Routledge.

Seale, C. (1998). Constructing Death: The Sociology of Dying and Bereavement. Cambridge: Cambridge University Press. [Read this article]

Seale, C. & van der Geest, S. (2004). Good and bad death: an introduction. Social Science & Medicine 58(5): 883–885. [Read this article]

Seale, C. (2005). The transformation of dying in old societies. In M. Johnson (ed.), The Cambridge Handbook of Age and Ageing (pp. 378–386). Cambridge: Cambridge: University Press.

Seymour, J., Witherspoon, R., Gott, M., Ross, H., Payne, S. & Owen, T. (2005). End-of-Life Care: Promoting Comfort, Choice, and Well-Being for Older People. Bristol: Policy Press (in association with Help the Aged).

Sidell, M. (1993). Death, dying and bereavement. In J. Bond, P. Coleman& S. Pearce (eds.), Ageing in Society: An Introduction to Social Gerontology (pp. 151–179). Buckingham: Open University.

Sidell, M. & Komaromy, C. (2003). Who dies in care homes for older people? In J. S. Katz & S. Peace. (eds.), End-of-Life Care Homes: A Palliative Approach (pp. 43–57). Oxford: Oxford University Press. [Read this article]

Snow, D. A., Soule, S. A. & Kriesi, H. (2004). Mapping the Terrain. In D. A. Snow, S. A. Soule & H. Kriesi (eds.), The Blackwell Companion to Social Movements (pp. 3–16). Oxford: Blackwell Publishing. [Read this article]

Sudnow, D. (1967). Passing On: The Social Organisation of Dying. Englewood Cliffs, NJ: Prentice Hall Inc.

Sweeting, H. & Gilhooly, M. (1997). Dementia and the phenomenon of social death. Sociology of Health & Illness 19(1): 93–117.

Walter, T. (1994). The Revival of Death. London: Routledge.

Walter, T., Pickering, M. & Littlewood, J. (1995). Death in the news: The public invigilation of private emotion. Sociology 29: 579–596. [Read this article]

Warburton, J. & McLaughlin, D. (2005). ’Lots of little kindnesses’: Valuing the role of older Australians as informal volunteers in the community. Ageing & Society 25(5): 715–730. [Read this article]

Williams, R. (1990). The Protestant Legacy: Attitudes to Death and Illness Among Older Aberdonians. Oxford: Clarendon Press.

Wilson, J. K., Fox, E. & Kamakahi, J. J. (1998). Who is fighting for the right to die? Older women’s participation in the Hemlock Society. Health Care for Women International 19(5): 365–380.